WTF Is Fibromyalgia?

Hello everyone! Thanks for checking out my latest blog post. My apologies that I haven’t been writing more, it’s been a great struggle for me. But I do plan on being here more often, sharing information from my journey that I hope will help others in similar situations. Hope you had a great Holiday and New Year surrounded by loved ones and delicious foods! 

I’ve realized that I’ve not yet discussed my chronic illness in detail, so I would like to take some time to talk about that today. 

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Most of all I’m just flattered you’re here. Thanks for stopping by!

WTF is Fibromyalgia? 

Before the decline in my health in 2011, I’d never even heard of Fibromyalgia, nonetheless knew anything about this debilitating chronic illness. I didn’t even really understand what a chronic illness is. I guess it’s one of those things that you couldn’t possibly comprehend unless you’ve experienced it personally, but as a writer I’m compelled to try and describe it so that those lucky enough to not know firsthand may understand, or at least get as close as they can to understanding, what it’s like to not be well, indefinitely. 

A “chronic illness” is defined by The Center for Managing Chronic Disease as “a long lasting condition that can be controlled but not cured.” Examples of chronic illnesses that are probably more familiar are allergies, asthma, epilepsy, and diabetes.

Fibromyalgia is defined by The Mayo Clinic as “a disorder characterized by widespread musculoskeletal pain, accompanied by fatigue, sleep, memory, and mood issues.”

If it sounds vague, that’s because it is. Fibro, like many immune or central nervous system (CNS) mediated syndromes and diseases, is poorly understood. The mechanisms of action and onset haven't yet been fully identified. It does not show up on labs and this makes it a huge PITA to diagnose. The current theory is that something is wrong with the part of the brain that processes pain signals, like having the volume knob on an amplifier cranked up to “11” at all times. 

"But, it goes to eleven."

Onset does seem to be “triggered” by a traumatic event or period of stress, such as major surgery, pregnancy/childbirth, or infection. Another interesting fun fact is that Fibro and the rest of the Immune/CNS illnesses are about 9 times more prevalent in women than in men. So hormones seem to play a role in this as well. It's a great medical mystery that I've become mildly obsessed with. 

We could read medical definitions ‘til the cows come home, but they don’t do a good job painting a picture about what the person affected is feeling or how their life is impacted.

So this is Fibromyalgia in my own words. 

It’s been very painful to write these concepts down, and even more difficult to share them, but I know it’s pertinent to the grieving process to get this stuff out. I think partly what’s held me back from sharing these gritty details, is not just because it’s uncomfortable, but also because I don’t want to be defined by my illness. I don’t want to be looked at as “that sick girl”, the person who is always talking about their diet or meds or symptoms or whatnot. I don't want to make others uncomfortable or scared by being honest about how I feel. I don’t want people to see me coming and duck for cover out of fear they will get cornered by a health related lecture or seemingly endless complaints about my latest aches and pains. 

But I do feel that it’s important to “come out of the closet”, so to speak. Us sick people need to share so that others know they’re not alone. And maybe by describing my experience I can help those not directly impacted understand these “invisible illnesses” a little better. 

I do not share this out of a desire for pity, but in the hopes of educating and inspiring :)

FIBROMYALGIA IS...

...Insidious and mostly invisible, like a slow poison. Confusing because it's different from day to day and person to person. Sometimes I need a cane, sometimes I don't. Sometimes I have the energy to do things on my own, and sometimes I don't. Making plans can be difficult because it's hard to predict how I'll be feeling in the future.

...People telling you “But you don’t look sick!” or "I wish I were as skinny as you!" thinking they’re being helpful when actually they’re discounting your experience.

...Being undiagnosed for three years. Looking for answers for three years. Doing all manner of tests and bouncing from specialist to specialist to specialist. Hemorrhaging money to try and figure things out. Being told you’re not sick, you’re making it up, you’re a hypochondriac, you’re sensitive, you’re mentally ill. 

...Going from an overtime working, SoCal commuting, hardcore raving and clubbing, race car fixing, beach combing, social butterfly, to a homebound hermit who can no longer stomach the facades of Facebook, in less than three years. 

...Having a timeline for your life: “Before I Got Sick” and “After I Got Sick”.

...Changes in the way my brain works that adversely affect creativity, memory, and the ability to focus, solve problems, and communicate. Writing used to flow out of me like water, now I struggle to squeeze it out drops at a time. I’ve become much more image based and thus am developing a newfound love of the visual arts. I’ve also become incredibly self-conscious about social interaction.

...Being a half Mexican from L.A. who has become extremely limited in where I can choose to live or travel because of debilitating sensitivities to UV rays and fluctuations in Barometric Pressure. A Mexican, sensitive to the sun!?! WTF?

...Missing sunbathing like a bird with clipped wings misses flying.

...No longer being able to work or be self-sufficient, but not qualifying for SSI/SSDI, and feeling like a burden to your loved ones as a result.

...Not being able to remember anything like I used to! Important dates, what time it is even though I just looked, what I came into this room to do (or was it to get something or tell somebody something?), how to spell words I never struggled to spell before, if I left the stove on, if I’ve told you this story already, if I’ve taken my supplements today. 

...PAIN. Indefinitely. With an opiate allergy. Threatening to drive you mad. Affecting the positions you use when trying to sleep. Stabbing. Throbbing. Aching. Burning. In my gut and abdomen. In my muscles. In my tendons. In my nerve endings. In my joints. In the bottoms of my feet. In my head. In my eyes. When I menstruate or ovulate. Sometimes it’s just one body part that’s bothering me, other times it’s everything at once.

...Struggling to eat/maintain a healthy weight, and feeling nauseous and sick most of the time, like a nuclear bomb went off in my gut.

...Feeling trapped inside my own body. Like my body has betrayed me. 

...Feeling like my life has been flipped upside-down, like I don’t have control over anything.

...Feeling misunderstood by everyone, including family, and struggling to express myself properly so they can understand better.

...Mind-blowing insomnia, like trying to sleep while buzzing off stimulatory drugs, mixed with extreme hypersomnia that makes me feel like a sloth with narcolepsy.

...Feeling like I have the stamina and vitality of a frail 95 year old woman carrying a 50 pound pack of lead. 

...Feeling like I’m on a roller coaster I can’t get off of when my vertigo kicks in.

...Feeling like I’m a rusted Tin Man from The Wizard of Oz when I’ve pushed too far and my chronic fatigue, inflammation, and arthritis kick into overdrive, making it difficult to move or walk.

Good friends are always there to help get you unstuck :)

...Losing Confidence: to go for drives, trips, or run errands by myself; to have conversations; to keep up on bills; to be an independent adult. 

...STRESS: Over money. Over my health. Over where I live vs. where I want to be. Over safe access to medicinal cannabis and other plant medicines. Over what people think. Over the lack of a light at the end of the tunnel.

...Desperately struggling to accept “a new normal”, while being tortured by dreams in my sleep of “my old life, the way things used to be”.

...Losing pigment in my skin, and getting random rashes and itchy feelings everywhere.

...Having half as much hair on my head as I did before 2011.

...Having your joints lock up on you and creak like an old haunted house. 

...Only having about 4-6 hours in each day I can be active before I burn out and need rest, usually for the rest of the day.

...Being best friends with a cat.

...Trying to pick up the pieces and figure out what’s next.

...Needing weeks to put together a measly blog post :/

That was a lot of some pretty heavy shit, so here's an adorable pic of my cat Freya to perk us up :)

*Whew*

That was some pretty heavy stuff. Hopefully educational though. 

I must confess it does feel good to finally be talking openly about my life as a chronically ill person. 

On to the “inspirational” part...

I would like to also include some positive things that have come out of this experience. Learning to cultivate an “Attitude of Gratitude” has become a vital part of my “Wellness Action Plan”. I cannot cure Fibromyalgia, but I can choose to not let it beat me down or ruin my life. I don’t have to quit, I don’t have to accept “no” or “you can’t”. I can still live a fulfilling and beautiful life!

FIBROMYALGIA HAS GIVEN ME:

...An opportunity to get to know myself intimately, becoming a stronger and more integrated person everyday.

...Exposure to industries, people, and ideas I probably wouldn’t have otherwise: Medical Cannabis and other Plant Medicines, Natural and Alternative Medicine, Herbalism, Neurochemistry and Pharmacology, Shamanism, Eastern Philosophy, Psychology, Personal Development, Alternative Spiritual Paths that truly resonate with me, Comedy and the healing power of Laughter, Alan Watts, Sasha and Ann Shulgin, Terence and Dennis McKenna, Carl Jung, Jim Rohn, Darren Hardy.

...Liberation from being overly attached to society and fear - fear of death, fear of being able to keep up with The Jones’s, fear of complying with the Status Quo, fear of consciousness exploration, fear of pain.

...An opportunity to contribute to causes far greater than my previous pursuits and truly serve others. 

...A strengthened and enriching bond with my super amazing boyfriend/hetero-life-partner. 

...A healthier perspective on life - “how to be truly present”, how to be grateful for all the little things we take for granted - the time we’ve been given in this life, being able to see, hear, speak, walk, taste, smell, stand in the sunshine, make love, give love, create, destroy. 

...The empowerment to believe in myself and take 100% responsibility for everything in my life.

...The opportunity to learn that I can overcome any obstacle, especially the greatest of all: Those that reside in my own head. 

Thanks for taking the time to read this super-duper long post! 

I hope you found it informative and inspiring :)

What are some tools you use to overcome your circumstances? 

What are you grateful for in the midst of any challenges you face?

*Love & Light*

Renata Carmen

Please, if you find any value from this blog, please consider making a donation to the PayPal link at the top right of the page. I don't create these posts expecting anything but to help/entertain others, but I am a disabled mechanic/artist who is not currently receiving SSI/SSDI and when I'm flared up it's hard if not impossible for me to get my hustle on. I'm also working on adding Bitcoin here! :) 

Accepting a "New Normal" - My Struggle with Reintegration

Old Zen Saying: 

“Before enlightenment, carry water, chop wood. After enlightenment, carry water, chop wood.”

“Where the hell have you been, Renata?”

It’s been several months since I’ve updated this blog, or been a regular on Facebook, or responded to emails in a timely manner. A lot of people in my life have been wondering what happened to me, and I’ve been stuck in my own little world, struggling to reconnect and carry on with my life.

In fact, ever since I was officially diagnosed with Fibromyalgia in February, I’ve found I’ve had to force myself to interact with others. Every aspect of my life, especially my social and personal life, has been flipped completely upside-down, especially when I first started getting sick.  I was so taken by surprise and overwhelmed and heartbroken by the deterioration in my health, it was all I could do to keep up with each day. I was riddled with grief, bitterness, anger, and despair over the perceived betrayal of my body and mind as my condition continued to get worse, despite my best efforts and countless labs and tests to try and figure things out. But at least then I was still trying to reach out to others. When my illness became so bad I was completely homebound, I found myself consumed with depression, and felt hideous stabs of heart-wrenching envy towards others in better health. Like a poison it seeped into every pore and warped my perception of reality. Suddenly my Facebook feed was filled with negative comments, petty complaints, and self-absorbed pictures. Conversations with most people seemed to revolve around things that no longer matter to me, like what commercials were funny last night, what the major headlines were, or who won American Idol. It grossed me out, shocked and confused me, had become something I could no longer identify with.

In short, I felt as though I had been completely removed from society. Like a homeless person pressed up against a restaurant window, drooling over all the marvelous dishes being served inside, imagining what it tastes like, smells like, feels like, to be one of those lucky diners on the other side of the glass. Hungering for the shared experience but having no idea how to become integrated, and despairing over the loss. Despairing because you feel like you will never, ever get to be apart of the greater whole ever again.

Not my art, but yeah this is a good visual of my struggle

After three long years of desperately seeking some sort of official diagnoses and finally getting it earlier this year, you’d think that would make it easier to reintegrate. To pick up the pieces of my life and fit them back together. Or at least I thought that’s what would happen. Instead, I find myself still desperately struggling to become apart of the fabric of society again. Not only to help others in any way I can, especially those who suffer from chronic illness or pain, a calling I feel deep in my soul and cannot ignore, but for my own sanity as well. Human beings are social creatures, we need intimacy and interaction to be healthy, whole people. I used to be an incredibly social person, always keeping up on the affairs of those I care about, organizing and attending events of all kinds, but that has all changed over the last couple years. Mostly it has to do with my chronic fatigue, compromised mental capacities, and UV sensitivity. I just don’t have the energy to do what I used to, and my “brain fog” affects my memory and communication skills, which makes me self-conscious in ways I never was before 2011. And the light sensitivity is just downright fucking inconvenient and odd. I always get the “This bitch is crazy!” look from others when it’s brought up in conversation or they notice me shunning sunshine and fluorescent lights like some kind of non-sparkly vampire. (Just to be clear, my favorite vampires remain those conjured by Anne Rice, which do not sparkle under any circumstances.)

But I find what inhibits my socialization and activity the most is my perspective, more so than the physical or mental limitations I’ve become so self-conscious of. Thankfully, the bitterness, anger, and resentment have mostly faded away. I still catch myself mourning all the losses I’ve experienced: relocating from the friends, music, and culture of Boulder, Colorado, to this sleepy Southern Vermont village more than 3 hours from any major city; having to leave my blossoming career with Whole Foods (the greatest company I ever worked for and one I could have actually pictured staying with for more than a couple years before getting burnt out and bored) because I can no longer physically or mentally keep up, and not being able to work in general; managing all the scary and bizarre symptoms associated with Fibromyalgia...but I suppose that is why grief is called a “process”...We never fully get over these deep losses, but the pain gets a little better every day. Eastern Philosophy and altered states of consciousness sure help to speed up these travails!

Alan Watts, one of the greatest men you've never heard of and a major part of my Sanity Regiment

What hasn’t changed and makes my reintegration so damned difficult is this feeling of being an “outsider”. I’ve undergone, and am still undergoing, a massive change as a person. I feel like a caterpillar that is becoming a butterfly. I’m being “tempered” by my struggles, by my near-death experiences, by my assumptions and beliefs being completely flipped on me. I, like the majority of people it seems, took certain things for granted, things that seemed like “givens” in life, things that were uncompromisable, unshakable, like the Law of Gravity. Things like being physically and mentally able to work or do chores, having the stamina to go about your day without needing to rest after 4 to 5 hours of activity, being able to stand in sunlight or under fluorescents. But I’ve come to realize that these are not experiences to be taken for granted. Every nerve that tingles, every pore that breathes, every sensation experienced, every moment you have in this body on this planet at this time, is a massive blessing and not to be taken lightly.

Yet it’s so easy to forget, isn’t it? As we go about our days, absorbed in the stress of the “Real World”, of our commutes and families and bills and Reality TV and Fantasy Football and politics and major headlines, we completely forget who we are, and all that we have. Until something is taken away, goes amiss, breaks down, we tend to not notice it’s even there. Like toilets. You take yours for granted, until it stops working and you have to wait for the plumber to come out and fix it. 

But what happens if the plumber doesn’t know what’s wrong with the toilet? And you see a bunch of different kinds of plumbers who do all kinds of tests and they still can’t figure it out? I guess plumbing isn’t as big a deal as the body, if your pipes or toilet are that messed up you can pull it all out and start over. It’s messy and expensive and a huge PITA, but it’s not like when there’s something wrong with your body and the doctors can’t figure it out. You can’t scrap your body and start over fresh with a new one when something goes terribly wrong. I used to believe that doctors knew everything about the body and how to fix it. But after the last couple years of bouncing from specialist to surgeon, lab to lab, shitting and pissing in cups and drawing more blood than a transfusion patient, I’ve learned that’s not the case at all. There’s a lot we don’t know about the body or why it goes wrong or how to fix it, more than most medical professionals will admit. Especially when it comes to the Central Nervous and Immune Systems going haywire. They seem to understand that about as well as Homer Simpson understands Quantum Mechanics. 

Come to think of it, this is how most medical professionals treat me when I'm telling them my full medical history

And that will shake up your little world, too. I thought I could trust the professionals, but their methods of treatment for diseases like Fibro are about as advanced as using leeches or cutting to drain the demons out of your blood when you’re sick with the flu. 

   What can you trust in this world when The Unshakables you’ve built your foundation upon fall apart? Like the functionings of your body or mind? How does one find stability in a seemingly chaotic and cold universe? How do you make the most out of a bad hand dealt to you by the luck of the draw? How can you go back to living life like you did before? Be the person you were when your friends met you? Will they still like me, accept me, now that I’m so different from who I was? How in the hell do I even have conversations now? Why is it so fucking hard for me to come out of this hermetic place, to come down from this lonely mountain top and be amongst the masses again? Is it because I see from up here we are all playing roles in this life, wearing masks, masks we call personas, but most of us have forgotten we’re playing a game and take it far too seriously for my liking? So seriously, in fact, that we kill and rape and pillage and gossip and war over it?

You shouldn’t have to go through hell like I have to understand this, but it seems that is the only way to see The Human Game with clarity. It seems this is why older, “more primitive” societies have Shamans, Witch Doctors, Monks, Hermits, Zen Masters. They help society stay balanced by providing an outside perspective. Maybe this is what I’m supposed to do. People ask me why I don’t watch or read mainstream news, radio, or television. It’s the same reason I’ve had a hard time getting back on Facebook. Our input drives our creativity, shapes our reality, molds what we believe is possible. There is such a huge amount of negativity on social and mainstream media I find it dizzying. If I allowed the inputs of mainstream society to shape my decisions, habits, and beliefs, I’d be taking pills to “manage” my illness, still be eating like shit, and bitching about my health/life in the progress. I wouldn’t be doing anything proactive about it. I never would have developed the gall to self-experiment with herbs, neurotransmitters, diet, and lifestyle, seeking my own solutions and listening to my own body rather than relying on the dogma of others. 

Has absolutely nothing to do with what I'm talking about, I just love the movie Dogma and Buddy Christ

Because we’re told over and over again, through magazines, newspapers, television, radio, and advertising, that we’re not good enough. That we’re incapable of empowerment or creativity or self-sufficiency. That you need a middle-man to help you manage your health, your money, your consciousness, your spirituality, your life. And that your persona is not a game, but very much real and to be taken deadly serious. Because otherwise you aren’t producing and consuming and that makes you a bad citizen in a Consumerist Based Society. 

Well, if my role is to be the Outsider Looking In, then maybe I should embrace it and be the best damn Hermit I can be. But I can only be useful if I come down off this summit and reintegrate. What’s the point of this journey, of my personal struggles and accomplishments, if I’m not giving anything back, if I’m the only one aware of them? Maybe my experiences could help ease the suffering of others, which I feel a strong urge, almost compulsion, to do in any way I can. No one should ever suffer needlessly, should ever have to walk this road alone, be denied the many options available to them for healing strictly because of outdated taboos and propaganda. 

And maybe I can use this as my “Why Power” (mad props to Darren Hardy!!) to overcome my withdrawal from society. Understanding Human Folly shouldn’t cause me to condemn or repel from it. 

It’s just part of The Game that we all play, whether we’re aware of it or not. Being aware of it doesn’t make anyone better or separate from others, it just enables one to play and learn more efficiently. To see life for the drama, the great dance that it is, and to enjoy the act of dancing rather than losing out on the present moment by obsessing over a destination, worrying over what tomorrow will bring, focusing on what we don’t have instead of realizing the vast abundance that constantly surrounds us, if only we would open ourselves up to it and embrace it. Not to pull away and close ourselves off from the immense beauty and magic happening. Happening Right Now. At This Very Moment. And this one. And this one too.

Let’s get off our apathetic asses and go experience as much as we can handle, relishing the Present Moment in all its glory, with an attitude of gratitude. Even if all I can do today is the most bare-bones of basics, if I can only handle being out of bed for short periods of time because I’m so fucking wiped out from fatigue and malaise and stomach issues that have me running to the toilet every couple minutes, I can still revel in the fact that I’m alive, that I have my perspective to contribute, that I can see and hear and feel and talk and think and dream. 

That I am one unique expression of the energy that comprises this glorious and mysterious Universe, and that is more than enough, and I am content.

And you are too!  We can all learn from each other, from the different perspectives we hold, if only we can develop the courage and strength to reach out to others, to share our vulnerabilities rather than hide from them. To come down from this damned lonely mountain top. The first step is always the hardest... Baby steps. I’ll start making small changes today to get me back on course.

‘Cuz holy shit, am I “ronery”! I miss you, world.

Is your glass half empty, or half full? What will you do to seize this day?  

*Love & Light* 

Renata “The Chronic Badass” Carmen

Please, if you find any value from this blog, please consider making a donation to the PayPal link at the top right of the page. I don't create these posts expecting anything but to help/entertain others, but I am a disabled mechanic/artist who is not currently receiving SSI/SSDI and when I'm flared up it's hard if not impossible for me to get my hustle on. I'm also working on adding Bitcoin here! :) 

Renata Carmen Health Update for YouCaring Fundraiser

Many thanks to all those that donated! This donation account is no longer active. Thanks to your support, my partner and I were able to pull together the needed funds to get the care I needed at the time, and relocate to a place where we could have some support from family and live in a climate that better suits my UV Sensitivity. 
However, the struggles of being a disabled mechanic/artist who does not currently receive SSI/SSDI are still very real. Please, if you find any value from this blog, please consider making a donation to the PayPal link at the top right of the page. I don't create these posts expecting anything but to help/entertain others, but when I'm flared up it's hard if not impossible for me to get my hustle on, so your support is still greatly appreciated. No amount is too small! 
I'm also working on adding Bitcoin here! :) 

Hello my beloved readers!

I do hope you all had Happy Holidays and a Blessed New Year!

Typing is murder for me right now so this will be brief.

I've been dealing with a major flare up in my symptoms, which has resulted in increased cognitive dysfunction (my brain is like a leaky sieve right now, its terrible), and a new issue where the muscles and/or nerves in my shoulders and back are spasming/tightening up and it feels like I've been in knots for almost a couple weeks straight now. I haven't found anything that alleviates it for longer than a couple hours. I fear it may be "myofascial pain" and will be discussing it with my PCP when I see him next week. Apparently, its a common issue amongst those suffering from Lupus or Fibromyalgia.

In the meantime, I will be very limited in how much work I will be doing on the computer. I do have this talk-to-text software to play with (many thanks to my buddy Amir of The Wisest and The Stupidest Podcast for the awesome Christmas Present!!!), so I am hoping to get some work done on some eBooks that have been knocking about in my brain-fogged mind for some time. But I have a feeling I will be creating exclusively video blogs for a while. Which I guess isn't such a big deal as my video posts get more views than anything else...which I personally don't get because I read blogs to, well, read, and tend to avoid video blogs like the plague...but I guess I gotta catch up with the times, and creating videos is far easier than writing for me right now.

I do plan on finishing my Holistic Health Tips (That Actually Work!) Series, which we can all use after the gluttony of the holidays I'm sure. Even I slacked a bit on what I ate and drank, and am paying dearly for it now in this "flare-up". Argh. What I would give to be "normal" haha.

Okay my arm is starting to feel like its on fire. Time to tie this up.

I created a short video update for my Medical Fundraiser, if you would like further details about my current health situation.

Thank you all for your continued support, love, and interest in my work.
You help me to keep a positive attitude and always pushing myself forward, even if it hurts a bit.

*Love & Light*

Renata Carmen

Holistic Tips for Surviving the Holidays in Good Health (That Actually Work!) – Part 1: Common Mullein

I hope you all had a blessed Thanksgiving yesterday filled with love, laughter, and wonderful foods!

As we enter the joyful chaos of this Holiday Season, we find ourselves caught up in a whirlwind of social events: eating, shopping, eating, gifting, eating, and traveling (and did I mention eating??).

This 45 day crunch of consumerism and partying can wreak havoc on the body’s defenses, making us more prone to catching the season’s flus, colds, and other bugs that threaten to dampen our merrymaking. There is nothing worse than being too sick to enjoy festivities that you have been looking forward to all year!

So how does one survive this onslaught with enough vitality left-over to enjoy the ride all the way through midnight on December 31^st , and beyond into the New Year? Especially when you are at a slight disadvantage from having a chronic illness or compromised immune system?

Most health sources quote the same usual remedies: Vitamin C, Echinacea, Elderberry, Garlic, Homemade Chicken Soup, Lots of Fluids, Lots of Rest, Tea, Zinc, Peppers, Local Raw Honey…the aids we have come to know and love when we aren’t feeling our best. But the majority of these treatments aren’t as effective once sickness has kicked in full force. They certainly help with the symptoms, sure, but what do you do when The Plague is going around the office and you wake up with what you know are the initial signs of impending doom? How do you stop that freight train?

I have dealt with chronically swollen lymph node glands in my face and neck, along with upper respiratory, sinus, and ear infections, ever since the ripe 'ole age of two years. My poor parents did everything 1980’s conventional medicine advised them at that time; I was on such heavy doses of antibiotics for so long they had to monitor my blood on a monthly basis to make sure the meds weren’t affecting my body in any adverse ways. The infections were so chronic I was eventually scheduled to get a tube in at least one of my ears, but a turn of life events in the family caused a lapse in our health insurance and so thankfully I was spared that potentially detrimental procedure. I continued to have chronic upper respiratory issues, including bi-annual Strep and bacterial infections, until I started aggressively adjusting my diet and lifestyle in 2009. During my lifetime, I have built up a tolerance or had an allergic reaction to just about every antibiotic and sinus med known to modern science.

In short, I know a thing or two from firsthand experience about managing the health of the ears, throat, nose, and lungs. And then there’s the whole immune system thing. I have been studying that too, since mine is pretty screwed. Am I a doctor? No. So don’t be brash, if you have some sort of pre-existing condition etc. you should always talk to your doctor first before trying something new.

But, I am someone who can tell you what has worked for me, and anyone I know who has tried it. Most recently I got to try these cold remedies on my boyfriend, who is not only my caregiver, but also works full-time in customer service at a grocery store. Needless to say, he has been a bit worn out from all the Holiday Crazies that emerge like a long-dormant locust invasion during this time of year (you know who you are! For shame!).  He started feeling unwell on Sunday, and by Monday was feeling fatigued along with a tell-tale “tickle” in his throat. The sort of throat “tickle” that usually becomes a painful, sore mess which makes swallowing feel like the worst torture, and right before Thanksgiving! Nooooo! My hard-working sweetheart was not going to be sick on our beloved and well-planned Turkey Day! Not if I had anything to do with it. He diligently followed my suggested regiment and by Wednesday was feeling loads better! My boyfriend was so impressed with the results he suggested I share my regiment with The World.

So, dear World, I share with you the four holistic aids I have found most useful for staving off infections, colds, and managing upper respiratory issues. They are inexpensive and easily accessible, in fact, you probably have one or two sitting in your kitchen pantry right now. I hope they serve you as well as they have aided my household, especially during this hectic time of the year.

Today I would like to discuss Mullein, an herb whose useful properties aren’t widely known outside of the wonderful world of Herbalism. The ironic thing is that we have probably all seen it at one time or another and regarded it as “just a weed”, rather than recognizing it for the versatile Plant Medicine that it is.

Verbascum thapsus , known as Common Mullein or Great Mullein, is a flowering weed that is usually found in open spaces where the ground has been disturbed. It is prolific and grows all over the continental US and beyond into Canada and Mexico. Since most Americans don’t have access to meadows, streams, fields, or forest openings, the majority of us have spied Mullein’s distinctive towering spikes of bright yellow flowers growing in ditches along roadways or scattered throughout the open wastes of dumps.

Picture from Wikipedia, its too cold where I am to get any of my own shots of Mullein growing

All parts of the plant have been used for medical applications since time immemorial. Mullein is primarily used to manage afflictions of the ears, especially infections, and it is also used as an expectorant, to alleviate swelling, mange the health of the lymphatic system, and treat spinal injuries. It is most commonly used as a tincture, but is also drunk as tea and even smoked. 

Mullein was first recommended to me by my Dad, who has Vogt-Koyanagi-Harada Syndrome, which we suspected I also had until it was ruled out by a VKH specialist earlier this year. Before he said anything to me about it, I was totally unfamiliar with the plant. My Dad and I share many of the same symptoms, including tinnitus, hearing sensitivities, and “feelings of fullness and itchiness” in the ears, and to my pleasant surprise I have found Mullein does an excellent job of alleviating these issues.

The very first time I used Mullein I was desperate. Earlier this year, while managing a flare in my inflammation, I woke up with the unmistakable sensation of full blown Strep Throat. My throat hurt so badly it felt like it was on fire, I sounded like I had swallowed a frog, the lymph nodes on my face and neck were swelling up, and my ears hurt and felt as though they were full of cotton. I knew I was in deep trouble, and wasn’t sure how to proceed. Even if I had easy access to transportation and wasn’t homebound from my light sensitivity, I would have still been hesitant to hop on over to a doctor’s office for what would more than likely have been a prescription for antibiotics. Not only do antibiotics take anywhere from 24 hours to a few days to start working (not an appealing thought when you’re in Strep Throat pain), I’m allergic to pretty much all of them, the rest can trigger a flare-up in certain autoimmune diseases so I avoid them as much as possible, and nowadays I’m far more hesitant to drop the medical equivalent of a nuclear bomb on my Gut.

So that leaves me with very little options via Western Medicine. What’s a Strep-Throaty girl to do?

Quite fortuitously, I came down with the Throat Affliction from Hades during the very same time I was performing preliminary research on Mullein for treating the afore-mentioned Tinnitus, hearing sensitivities, and other ear issues I’ve been dealing with during the onset of my autoimmune disease (whatever it ends up being – it’s looking like Lupus or Mixed Connective Tissue Disease but I’m still undiagnosed at this time). 

After reading about the plant’s supposed powerful effects on ear infections, my boyfriend came to my rescue for the zillionth time and brought a bottle of Mullein Leaf Tincture home from work that afternoon. I had been in pain for several hours, unable to eat anything not in liquid form or smoke any of my medical cannabis. Even the simple act of swallowing caused excruciating pain. I was not a happy camper, to say the least.

After reading the bottle and doing some third party research, I put the maximum suggested dose of two droppers of tincture into a small cup of water and drank deeply, making myself swish each gulp around in my mouth for a few seconds before swallowing - so as to help my lymph node glands absorb it more readily. The tincture looks a lot scarier than it tastes; having a very dark brown, basically black color, but mild earthy taste that is easily masked by whatever liquid you choose to put it in. 

I felt relief immediately. It was like a cool hand had massaged my throat/ears/glands and relaxed them. 

This result has since been repeated in others, most recently my boyfriend. My research had shown Mullein is highly noted for the instant relief it can provide to swellings and the pain caused by them. How wonderful to see it working in real time!

After a few days of using the Mullein tincture as directed on the bottle, along with the other three aids I will be discussing in the rest of this series, my Strep Throat and any signs of ear or lymphatic infection were completely alleviated! I felt like singing my praises from the rooftops! And then I did my “Suck It, Big Pharma” dance! How I wish my folks had access to information in the 80's like we do today with the Internet. This herb could have made my childhood far more bearable.

I am in love with this versatile and humble “weed” and strongly encourage you to conduct your own research so that you may see how it could bring positive health benefits into your own home (or workplace). I no longer consider my medicine cabinet complete without a bottle of Mullein tincture, and look forward to growing my own or wild harvesting it someday (from the wild - not from near a trash heap!) so I don’t have to keep buying it. But, at less than $20 a bottle, and around 30 servings per container, I have zero complaints about cost (Can’t find it in your local stores or have a difficult time leaving the house like I do? Amazon has Mullein, along with a bunch of other holistic stuff!). And its ridiculously safe, although the bottle does say to avoid “while pregnant or breastfeeding”. Not sure what that’s about. Merits more research, but since I don’t plan on spawning anytime soon (*knocks on wood*) I haven’t taken the time to look into it. 

If you do and find anything of interest, please share your findings with me!

Here are three really good websites for getting started on your own Mullein research:

http://herbcraft.org/mullein.html

http://www.botanical.com/botanical/mgmh/m/mulgre63.html

http://www.fcps.edu/islandcreekes/ecology/common_mullein.htm

I do hope you find this information enlightening and empowering!

What are some of your favorite remedies for treating throat or ear infections?

Stay tuned for the rest of my Tips for Surviving the Holidays in Good Health!

*Love & Light*

-Renata Carmen

Please, if you find any value from this blog, please consider making a donation to the PayPal link at the top right of the page. I don't create these posts expecting anything but to help/entertain others, but I am a disabled mechanic/artist who is not currently receiving SSI/SSDI and when I'm flared up it's hard if not impossible for me to get my hustle on. I'm also working on adding Bitcoin here! :) 

Catching up with the Times - First Vlog Post! "Organic Doesn't Mean GMO Free"

Greetings All!

Apologies for dropping off, again.

Since I last posted here, I have been working through a very comprehensive Elimination Diet.

I am putting together a write-up about my experiences and discoveries thus far, but I have been detoxing in the process (yes, detoxing from food!) and so have been extra "inflamed" as I call it. Lots of pain, brain fog, and debilitating fatigue. I keep telling myself its worth it, and it is, but its the most difficult challenge I've faced yet in my life, which is saying something considering I've seen some shit.

Since writing has been challenging for me due to my cognitive dysfunctions, and crappy ergonomic chair and desk set-up, I've been playing around with the idea of starting a podcast. I don't have the proper equipment just yet for that, so for the interim I plan to post rants on YouTube.

Here is my first one, inspired by some facts I picked up this morning while browsing the Interwebs.

I hope you find it informative, entertaining, and inspiring!
After watching it a few times I've started nit-picking it to death, but we all have to start somewhere, and I am excited to experiment with different forms of media.



Thank you so much for watching! I'm eager for constructive feedback.
What topics of research are important to you as a fellow "Chronic Badass"?

Please, if you find any value from this blog, please consider making a donation to the PayPal link at the top right of the page. I don't create these posts expecting anything but to help/entertain others, but I am a disabled mechanic/artist who is not currently receiving SSI/SSDI and when I'm flared up it's hard if not impossible for me to get my hustle on. I'm also working on adding Bitcoin here! :)